How to use this guide: Fill in your child's details and complete each section before surgery. Print it and bring it to every pre-surgery appointment, the anaesthetist consultation, and on the day of surgery. Hand it to every member of staff who will be involved in your child's care.
Autism Awareness Zimbabwe
autismawarenesszimbabwe.com
Pre-Surgery Preparation Guide
For autistic children ยท Read before treating

โš ๏ธ This child has autism. Please read this guide before any pre-operative assessment, anaesthetic consultation, or surgical procedure.

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About My Child

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What to Tell the Anaesthetist

Tick everything that applies. This section is specifically for the anaesthetist and should be shared at the pre-operative assessment.

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Questions to Ask the Anaesthetist & Surgeon

Use the answer lines to write down what you are told. Keep this guide as a record.

1

Can my child have pre-medication to reduce anxiety before the procedure?

For very anxious or distressed autistic children, oral pre-medication given 30-60 minutes before can make the whole experience significantly calmer.

2

Can I stay with my child until they are fully under anaesthetic?

This is a reasonable request for autistic children and should be accommodated wherever clinically possible.

3

Can I be called to recovery the moment my child begins to wake?

Waking from anaesthetic in an unfamiliar environment without a known person can be severely distressing for autistic children.

4

What is the plan if my child becomes severely distressed before or during induction?

Ask for this to be decided in advance โ€” not improvised on the day.

5

What pain management will be used after the procedure?

Autistic children may not communicate pain in typical ways. Ask how pain will be assessed and managed post-operatively.

6

How long is recovery expected to take and what does the environment look like?

Ask whether there is a quiet recovery option away from busy ward areas.

7

Can we do a pre-visit to see the theatre environment before the day?

Many hospitals will accommodate this for autistic children if asked in advance.

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Medical Information

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Your Rights

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You have the right to give or withhold informed consent

No procedure can go ahead without your informed consent. You must be told clearly what will happen and why. Take your time. Ask questions. You can say no.

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You have the right to request reasonable adjustments

Under the CRPD (ratified by Zimbabwe and most African countries) and the UK Equality Act, medical teams must make reasonable adjustments for your child's disability. Pre-medication, quiet environments, and parental presence are reasonable requests.

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You have the right to be present with your child

As parent or guardian of an autistic child you have the right to stay with your child for as long as clinically possible โ€” including during induction and immediately in recovery.

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You have the right to raise concerns and make a complaint

If your concerns are dismissed or your child is mistreated, you have the right to ask for a senior clinician, make a formal complaint to hospital management, and contact the relevant medical regulatory body. Use our Hospital Complaint Letter Generator.

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What to Bring on the Day

Additional Notes
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